Additional links

Anti-NMDAR encephalitis patient group in Germany:
www.anti-nmda-rezeptor-enzephalitis.de

Support Group Autoimmunenzephalitis:
autoimmunenzephalitis-selbsthilfe.de

Neuromyelitis Optica Study Group:
www.nemos-net.de

SPS Self-help Group:
www.stiff-person.de

The European Reference Network that aims at improving the care of patients with Rare Immunological Disorders
ern-rita.org

 

Link to the GENERATE internal member community:
Password-protected member community area

Facebook page
facebook.com/GENERATE.eV

 

presentation slides: Patientenforum 23.05.2022

Centers

Find a center near you here.

Latest news

NEMOS Patient:innentag 2025

Datum: 01.10.2025
Tagungsort und Hotel: Sportschule und Bildungsstätte, Frankfurt am Main

DGN-SPECIAL Neuroimmunologie Summer Academy präsentiert von den Netzwerken GENERATE und NEMOS 08.-09. Sept. 2025

In der Evangelischen Akademie Frankfurt und im Hybridformat werden wir aktuelle Erkenntnisse zu autoimmunen Enzephalitiden, paraneoplastischen Syndromen, MOG-Antikörper-assoziierten Erkrankungen (MOGAD), Neuromyelitis optica Spektrumserkrankungen (NMOSD) und myasthenen Syndromen vermitteln.

zur Einladung

GENERATE e.V. is nominated for the International Life Sciences Awards 2024


References

Translational imaging of TSPO reveals pronounced innate inflammation in human and murine CD8 T cell-mediated limbic encephalitis.

Gallus M, Roll W, Dik A, Barca C, Zinnhardt B, Hicking G, Mueller C, Naik VN, Anstötz M, Krämer J, Rolfes L, Wachsmuth L, Pitsch J, van Loo KMJ, Räuber S, Okada H, Wimberley C, Strippel C, Golombeck KS, Johnen A, Kovac S, Groß CC, Backhaus P, Seifert R, Lewerenz J, Surges R, Elger CE, Wiendl H, Ruck T, Becker AJ, Faber C, Jacobs AH, Bauer J, Meuth SG, Schäfers M, Melzer N. Translational imaging of TSPO reveals pronounced innate inflammation in human and murine CD8 T cell-mediated limbic encephalitis. Sci Adv. 2023 Jun 9;9(23):eabq7595. doi: 10.1126/sciadv. abq7595. Epub 2023 Jun 9. PMID: 37294768; PMCID: PMC10256169.

Crebrospinal fluid proteomics indicates immune dysregulation and neuronal dysfunction in antibody associated autoimmune encephalitis.

Räuber S, Schroeter CB, Strippel C, Nelke C, Ruland T, Dik A, Golombeck KS, Regner-Nelke L, Paunovic M, Esser D, Münch C, Rosenow F, van Duijn M, Henes A, Ruck T, Amit I, Leypoldt F, Titulaer MJ, Wiendl H, Meuth SG, Meyer Zu Hörste G, Melzer N. Cerebrospinal fluid proteomics indicates immune dysregulation and neuronal dysfunction in antibody associated autoimmune encephalitis. J Autoimmun. 2023 Feb;135:102985. doi: 10.1016/j.jaut.2022.102985. Epub 2023 Jan 6. PMID: 36621173.

Cross-reactivity of a pathogenic autoantibody to a tumor antigen in GABAA receptor encephalitis

Brändle SM, Cerina M, Weber S et al. PNAS March 2, 2021 118 (9) e1916337118.

Dieses Paper wurde vom Research4Rare Verbund zum Paper of the Month gewählt und erscheint im April dieses Jahres im BMBF Newsletter!

A Therapeutic Non-self-reactive
SARS-CoV-2 Antibody
Protects from Lung Pathology
in a COVID-19 Hamster Model

Kreye J, Momsen Reincke S, Kornau HC et al.
Cell. 2020 Nov 12;183(4):1058-1069.e19.

CD8+ T-Lymphocyte–Driven Limbic
Encephalitis Results in Temporal Lobe
Epilepsy

Pitsch J, van Loo KMJ, Gallus M et al.
Ann Neurol. 2021; 00:1-20.

Low CSF CD4/CD8+ T-cell proportions are associated with blood-CSF barrier dysfunction in limbic encephalitis.

Hansen N, Schwing K, Önder D, et al. Epilepsy Behav. 2020;102:106682.



Support Group Autoimmunenzephalitis: